How Does a Preference-Based Generic Health-Related Quality of Life Measure Perform in Patients with a Rare Disease? Measurement Properties of the EQ-5D-Y Proxy Version among Underage Patients with Neurofibromatosis Type 1

Wanxian Liang,Shihuan Cao, Yusi Suo,Lining Zhang, Lujia Yang, Hanfei Wang, Han Wang,Xuejing Jin

Orphanet Journal of Rare Diseases（2025）

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关键词

EQ-5D-Y,Measurement properties,Neurofibromatosis type 1,Health-related quality of life,Rare diseases

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