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Secondary Use of Patient Data Within Decentralized Studies Using the Example of Rare Diseases in Germany: A Data Scientist's Exploration of Process and Lessons Learned

Michele Zoch,Christian Gierschner, Anne-Katrin Andreeff,Elisa Henke,Martin Sedlmayr,Gabriele Mueller, Jenny Tippmann,Helge Hebestreit,Daniela Choukair,Georg F. Hoffmann, Fleur Fritz-Kebede,Nicole Toepfner,Reinhard Berner,Stephanie Biergans,Raphael Verbuecheln,Jannik Schaaf, Julia Fleck,Felix Nikolaus Wirth,Josef Schepers,Fabian Prasser

DIGITAL HEALTH（2024）

引用 0|浏览6
关键词
Data management,decentralized study,FHIR,interoperability,secondary use of patient data,rare diseases
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