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Chatting: Family Carers' Perspectives on Receiving Support from Dementia Crisis Teams

Marcus Redley,Fiona Poland, Juanita Hoe, Tom Dening, Miriam Stanyon, Jen Yates, Amy Streater, Dons Coleston-Shields,Martin Orrell

HEALTHCARE(2024)

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Abstract
Family caregivers are vital to enabling people with dementia to live longer in their own homes. For these caregivers, chatting with clinicians-being listened to empathetically and receiving reassurance-can be seen as not incidental but important to supporting them. This paper considers and identifies the significance of this relational work for family carers by re-examining data originally collected to document caregivers' perspectives on quality in crisis response teams. This reveals that chatting, for family caregivers, comprises three related features: (i) that family caregivers by responding to a person's changing and sometimes challenging needs and behaviors inhabit a precarious equilibrium; (ii) that caregivers greatly appreciate 'chatting' with visiting clinicians; and (iii) that while caregivers appreciate these chats, they can be highly critical of the institutionalized character of a crisis response team's involvement with them.
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Key words
dementia,family carers,community care,carer experiences,qualitative interviews
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