The Indian Academy of Pediatrics and Directorate General of Health Services, Government of India White Paper on Transition of Care for Youth with Special Health Care Needs.

Jagdish Chandra, Mamta Manglani,Satinder Aneja, K P Vinayan, Aditi Sinha,Piali Mandal,Devendra Mishra,Rajeev Seth, Upendra Kinjawadekar

Indian pediatrics(2024)

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摘要
Over the years, survival of children with chronic diseases has significantly improved and a large proportion of them now are entering into adult hood. Transition of Care (ToC) of such patients with having childhood onset of chronic diseases to the adult health care system is well organized in developed countries, although it is an emerging concept in India. In situations where the systems for ToC are not in place, such cases are fraught with unsatisfactory health outcomes. With proper ToC in place, these patients are likely to receive uninterrupted care by the adult care physicians and hence reach their full potential. This document highlights the need, rationale and way forward for ToC of youth with special health care needs (YSHCN) across the country. It also describes the standard operating procedures to develop the ToC at a hospital level for clinicians and administrators.
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