Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition

Gary F. Sholler,Lisa A. Selbie,Mary Tallon, Jessica Keating,Julian Ayer,Luke Burchill,Michael M. H. Cheung,Rachael Cordina,Evelyn Culnane, Shakira Donovan,Lucas Eastaugh, Caitlin Elliott, Jeffery Fletcher,Robert N. Justo,Nadine A. Kasparian,Andrew Kelly, Dominique Morsman, Mugur Nicolae,Yishay Orr, Elle Pendrick, James M. Ramsay, Bo Remenyi, Stephen Shipton, Robert G. Weintraub, Elsa Van Wijk, Gavin Wheaton, Prem Venugopal

HEART LUNG AND CIRCULATION(2024)

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摘要
These first Australian National Standards of Care for Childhood -onset Heart Disease (CoHD Standards) have been developed to inform the healthcare requirements for CoHD services and enable all Australian patients, families and carers impacted by CoHD (paediatric CoHD and adult congenital heart disease [ACHD]) to live their best and healthiest lives. The CoHD Standards are designed to provide the clarity and certainty required for healthcare services to deliver excellent, comprehensive, inclusive, and equitable CoHD care across Australia for patients, families and carers, and offer an iterative roadmap to the future of these services. The CoHD Standards provide a framework for excellent CoHD care, encompassing key requirements and expectations for whole -of -life, holistic and connected healthcare service delivery. The CoHD Standards should be implemented in health services in conjunction with the National Safety and Quality Health Service Standards developed by the Australian Commission on Safety and Quality in Health Care. All healthcare services should comply with the CoHD Standards, as well as working to their organisation's or jurisdiction's agreed clinical governance framework, to guide the implementation of structures and processes that support safe care.
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