Associations Between Sociodemographic Characteristics and Unmet Supportive Care Needs in Adults with CF (TH371A)

•Describe the prevalence of unmet supportive care needs among adults living with cystic fibrosis.•Identify associations between specific unmet supportive care needs and various sociodemographic variables among adults living with CF. Patients with cystic fibrosis (CF) report impaired quality of life. Little is known regarding specific unmet supportive care needs among patients with CF, and their relationship with sociodemographic factors. To identify associations between sociodemographic variables and unmet supportive care needs regarding: anxiety, sadness, pain, and uncertainty about the future of living with CF. Adults with CF were recruited from an academic CF clinic to complete the Supportive Care Needs Survey (SCNS-34). The SCNS-34 addresses the prevalence of 34 unmet supportive care needs, as well as desire for support to address any unmet needs. Multivariable logistic regression was used to identify associations between sociodemographic variables and unmet supportive care needs, adjusting for demographic and clinical variables. Of 165 participants (56% male; median age: 29 years), 28% indicated some need for support regarding sadness, 39% for anxiety, 39% for uncertainty about the future with CF, and 37% regarding pain. Insufficient income was associated with needs for support regarding anxiety (OR: 6.48; 95% CI: 2.08, 20.2), sadness (OR: 6.15; 95% CI: 2.04, 18.5), pain (OR: 7.06; 95% CI: 2.22, 22.4), and uncertainty regarding living with CF (OR: 3.43; 95% CI: 1.18, 9.99). Male gender was associated with lower need for support with anxiety (OR: 0.42; 95% CI: 0.20, 0.88). Older age was associated with increased needs for support managing pain (p=0.02). Religiosity was protective regarding needs for support with sadness (OR: 0.41; 95% CI: 0.18, 0.94) and pain management (OR: 0.34; 95% CI: 0.15, 0.78). Adults with CF report significant unmet needs for support in a number of physical and emotional domains; many of these associations were associated with various sociodemographic characteristics, most notably, income.