“We do it all”: A qualitative exploration of the caregiver role for young adults with cerebral palsy

•Caregivers of adults with cerebral palsy (CP) coordinate high-level care.•They also navigate countless logistic and insurance barriers during transition.•Adjusting to adulthood and planning for an uncertain future are challenging.•Caregivers prioritize maintaining quality of life for their adult children.•Healthcare transition processes should attend to caregivers in addition to youth.