Supportive care and information needs of men following prostate cancer treatment: a qualitative study

Abstract Purpose To assess the psychosocial and informational needs of prostate cancer survivors who had attended an information session designed to help men better understand their diagnosis and treatment options. Methods We thematically analysed the qualitative interviews of 12 prostate cancer survivors and identified emerging themes related to psychosocial and informational needs following treatment. Results The most common source of psychosocial distress was side effects related to androgen deprivation therapy. Young men exhibited higher levels of distress than older men. All men were reluctant to seek psychosocial support, and despite attending the information session, still expressed a desire for more information and clarity around their diagnosis and treatment options. Conclusions A minority of prostate cancer survivors experience ongoing psychosocial needs associated with treatment side effects. These men often expressed treatment regret, but did not seek support for their distress, highlighting a barrier that prevents male help-seeking. Implications for Cancer Survivors The provision of an additional information session offers a vital service to patients and has the potential to help bridge the difficult period between initial diagnosis and treatment, when prostate cancer patients must make important health decisions. Further investment in information sessions is needed to meet the informational needs of prostate cancer patients.