Patient-Centered Quality Measures for Dialysis Care: A Report of a Kidney Disease Outcomes Quality Initiative (KDOQI) Scientific Workshop Sponsored by the National Kidney Foundation

Providing high quality patient-centered care is the central mission of dialysis facilities. Assessing quality and patient-centeredness of dialysis care is necessary for continuous dialysis facility improvement. Based predominantly on readily measured items, current quality measures in dialysis care emphasize biochemical and utilization outcomes, with very few patient-reported items. Additionally, current metrics often do not account for patient preferences and may compromise patient-centered care by limiting the ability of providers to individualize quantifiable care targets, such as dialysis adequacy based on patient priorities rather than a fixed numerical target. Developing, implementing and maintaining a quality program using readily quantifiable data while also allowing for individualization of care targets emphasizing the goals of patients and their care partners provided the motivation for a September 2022 Kidney Disease Outcomes Quality Initiative (KDOQI) Workshop on Patient-Centered Quality Measures for Dialysis Care. Workshop participants focused on four questions: 1. What are the outcomes that are most important to patients and their care partners; 2 How can social determinants of health be accounted for in quality measures; 3. How can individualized care be effectively addressed in population-level quality programs; and 4. What are the optimal means for collecting valid and robust patient reported outcome data? Workshop participants identified numerous gaps within the current quality system and favored a conceptually broader, but not larger, quality system that stresses highly meaningful and adaptive measures that incorporate patient-centered principles, individual life goals and social risk factors. Workshop participants also identified a need for new, low-burden tools capturing patient goals and priorities.