Developing an Edema Clinician-Reported Outcome Measure for Nephrotic Syndrome.

Debbie S Gipson, Maisha Pal,Hailey Desmond,Charles Anderson,Liron Walsh,Howard Trachtman,Susan F Massengill,Patrick Gipson,Panduranga S Rao,Joshua Thurman,Jeffrey Kopp,Elaine Kamil,Jennifer Lamothe,Laura H Mariani,Paula LaFleur,Suzanne Vento,Michelle O'Shaughnessy,Youssef M K Farag,Christine Simon,Noelle E Carlozzi

Glomerular diseases（2023）

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摘要

The Edema ClinRO (V1) measure is developed specifically to measure edema in nephrotic syndrome. The tool assesses edema across multiple body parts, and it includes a training module to ensure standardized administration across raters. Future examination of this measure is ongoing to establish its reliability and validity.

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