Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.

Lucy Coombes,Daney Harðardóttir,Debbie Braybrook,Hannah May Scott,Katherine Bristowe,Clare Ellis-Smith,Lorna K Fraser,Julia Downing,Myra Bluebond-Langner,Fliss Em Murtagh,Richard Harding

Palliative medicine（2023）

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摘要

This study highlights the importance and feasibility of involving key stakeholders in PROM item generation, as important differences were found in the priority outcomes identified by children, parents and professionals.

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关键词

Outcome assessment, Delphi survey, public participation, palliative care, children

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