Development and validation of a neurobehavioral evaluation tool for neurodevelopmental genetic syndromes

There are few well-validated measures that are appropriate for assessing the full range of neurobehavioral presentations in neurodevelopmental genetic syndromes (NDGS). As potential therapeutics are developed, having reliable, valid, and freely available measures to track a range of neurobehavioral domains will be crucial for future clinical trials. This study focused on the development and initial psychometric evaluation of a set of freely available informant-report survey scales: the Neurobehavioral Evaluation Tool (NET).