Impact of hospitalization for vaso-occlusive crisis on health-related quality of life in children with sickle cell disease.

Caroline Vuong,Ibtissame Moussa,Maud M van Muilekom,Harriët Heijboer,Eva Rettenbacher,Lotte Haverman,Jos Twisk,Karin Fijnvandraat,Corien L Eckhardt

Pediatric blood & cancer（2023）

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摘要

The adverse effects of hospitalization for VOC in children with SCD persist up to 12 months after hospitalization. After hospitalization for VOC, extra attention and support for its negative impact on HRQoL are recommended. This study also underlines the importance of systematically measuring HRQoL, allowing clinicians to intervene accordingly.

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children, health-related quality of life, patient-reported outcomes, sickle cell disease, vaso-occlusive crisis

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