Florida-California Cancer Health Equity Center (CaRE 2 ) Community Scientist Research Advocacy Program

B. Hensel, N. Askins, E. Ibarra, C. Aristizabal,I. Guzman, R. Barahona, B. Hazelton-Glenn,J. Lee,Z. Zhang,F. Odedina,D. J. Wilkie,M. C. Stern,L. Baezconde-Garbanati,S. Suther,F. Webb

Journal of cancer education : the official journal of the American Association for Cancer Education(2023)

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摘要
The Community Scientist Program (CSP), a model connecting researchers with community members, is effective to inform and involve the general population in health-related clinical research. Given the existing cancer disparities among Black/African American and Hispanic/Latino/a populations, more models describing how cancer-related CSPs are designed, implemented, and evaluated are needed. The Florida-California Cancer Research, Education and Engagement (CaRE 2 ) Health Equity Center is a tri-institutional, bicoastal center created to eliminate cancer health disparities among Black/African American and Hispanic/Latino/a populations living in California and in Florida. The CaRE 2 Center created a Community Scientist Research Advocacy (CSRA) training program for community members to become cancer research advocates. The CSRA program is currently a 13-week program conducted 100% virtually with all materials provided in English and Spanish for participants to learn more about prostate, lung, and pancreas cancers, ongoing research at CaRE 2 , and ways to share cancer research throughout their communities. Participants attend didactic lectures on cancer research during weeks 1–5. In week 4, participants join CSRA self-selected groups based on cancer-related topics of interest. Each group presents their cancer-related advocacy project developed during weeks 5–12 at the final session. In this paper, we describe the CaRE 2 Health Equity Center’s CSRA program, share results, and discuss opportunities for improvement in future program evaluation as well as replication of this model in other communities.
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关键词
Community engagement,Research advocacy,Community scientist,Community Scientist Research Advocacy Program (CSRA),Health disparities
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