Impact of a family-centred clinical care programme on short-term outcomes of very low-birth weight infants

Aim: We evaluated the effects of a family-centred clinical care pathway and case management programme on short- term clinical outcome in a cohort of very low- birth weight (VLBW) infants.Methods: The programme, named NeoPAss, was developed at the Department of Neonatology Children's hospital Passau in 2013. Short- term outcomes of infants were compared to matched controls from the Bavarian neonatology surveillance database before (n = 111; 2008- 2012) and after implementation (n = 170; 2014- 2017).Results: After implementation the rate of late- onset sepsis was significantly lower (2.5% vs. 10.7%, p = 0.005) and the length of stay was significantly shorter (VLBW 28 to 31 weeks' gestational age (GA) 47.5 vs. 53.1 days, p = 0.047; <28 weeks' GA 79.4 vs. 91.9 days, p = 0.007) in the intervention group compared to controls. Infants were discharged with significantly lower weight (mean 2351 vs. 2539 g, p = 0.013). There was no statistically sig- nificant difference in the rate of intraventricular haemorrhage (3.7% vs. 8.2%), necrotizing enterocolitis (0.6% vs. 1.9%) and bronchopulmonary dysplasia (0% vs. 6.9%).Conclusion: Our data confirm that of other studies demonstrating a beneficial effect of family-centred care programmes and provides evidence that structured parental involvement is not associated with increased risk of infection in a VLBW cohort.