Development of a person-centred digital platform for the long-term support of people living with an adult-onset genetic disease predisposition: a mixed-methods study protocol.

Stephanie Best,Abdullah Al Mahmud, Shivani Tyagi, Jack C W Wheeler,Abdur Rahim Mohammad Forkan,Alexandra Lewis,Nadeem Shuakat,Rohit Kaul,Aisha Ward,Nilmini Wickramasinghe,Prem Prakash Jayaraman,Alison H Trainer

BMJ open（2023）

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摘要

This study was approved by the Peter MacCallum Human Research Ethics Committee (HREC/88892/PMCC). Results will be disseminated in academic forums, peer-reviewed publications and used to optimise clinical care.

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关键词

genetic disease predisposition,digital platform,mixed-methods mixed-methods study,person-centred,long-term,adult-onset

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