What do parents want from healthcare services? Reports of parents' experiences with pediatric service delivery for their children with disabilities.

Disability and rehabilitation(2023)

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摘要
This article identifies components of healthcare that families find helpful and desirable.Implications for RehabilitationFamily-centred service (FCS) is an established approach for delivering services in children's rehabilitation and healthcare.However, parents continue to experiences aspects of care that are not family-centred.Parents of children with disabilities identified components of care that they want from healthcare services.New components of care that go beyond what was identified in the original measure of FCS (MPOC) include: effective communication (vs information giving); practical support (in addition to emotional and informational support); and availability and scheduling.
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关键词
pediatric services delivery,disabilities,parents,healthcare services
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