Is sub-national healthcare social protection sufficient for protecting rare disease patients? the case of China.

Frontiers in public health(2023)

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摘要
In China, the provincial health authorities have developed some level of social protection for rare disease patients. However, there are still gaps regarding coverage and regional inequality; and there is room for a more integrated healthcare safety-net for people suffering from rare diseases at the national level.
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关键词
rare disease, orphan drug, healthcare safety net, national basic medical insurance, China
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