Health Data Democratization in Austria: Patients' Perspective.
Studies in health technology and informatics(2023)
Abstract
Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided.
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Key words
austria,data,health,patients
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