Building the foundation for a modern patient-partnered infrastructure to study temporomandibular disorders.

Laura Elisabeth Gressler,Terrie Cowley,Marti Velezis,Suvekshya Aryal,Deanne Clare,John W Kusiak,Allen W Cowley,Art Sedrakyan,Danica Marinac-Dabic,Michelle Reardon, Lisa Schmidt, Jennifer Ginsburg Feldman, Vincent DiFabio,Suzie Bergman,Vahan Simonyan, Yelena Yesha,Ingrid Vasiliu-Feltes,Justin Durham,Andrew I Steen,Phillip Woods,Flavia P Kapos,Nilsa Loyo-Berrios

Frontiers in digital health（2023）

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摘要

The identified data elements and development of the technological platform establishes a data infrastructure that facilitates the standardization and harmonization of data as well as perform high performance analytics needed to fully leverage the captured patient-generated data, clinical evidence, and other healthcare ecosystem data within the TMJ/TMD-CRN.

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关键词

temporomandibular joint, temporomandibular joint disorders, temporomandibular joint dysfunction syndrome, temporomandibular joint disc, delphi, coordinated registry network, data infrastructure and integration

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