Von Willebrand disease: Gaining a global perspective.

Jamie M O'Sullivan,Ellia Tootoonchian,Baiba Ziemele,Michael Makris,Augusto B Federici,Claudia Khayat Djambas,Magdy El Ekiaby,Dawn Rotellini,Robert F Sidonio,Alfonso Iorio,Donna Coffin,Glenn F Pierce,Jeffrey Stonebraker,Paula D James,Michelle Lavin

Haemophilia : the official journal of the World Federation of Hemophilia（2023）

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摘要

Registration rates of People with Von Willebrand Disease (PwVWD) vary internationally and are influenced by national income status Although females represent the majority of PwVWD globally, in low income countries (LIC) males predominated, possibly related to stigma surrounding gynaecological bleeding. Rates of type 3 VWD registration were significantly influenced by economic status (81% of VWD diagnoses in LIC), suggesting only the most severe VWD types are diagnosed in resource limited settings.

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关键词

bleeding disorder, diagnosis, registration, von Willebrand disease, von Willebrand factor

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