Barriers and facilitators to the transplant process among patients living with polycystic kidney disease: a qualitative Approach.
BMC nephrology(2023)
摘要
These findings suggest that increasing social support and patient agency, such as through patient navigator programs and encouraging effective communication between health care providers and patients, can facilitate the transplant process. Increasing dissemination of transplant knowledge from institutions and systems to patients through paired kidney exchange education and live donor outreach can also increase timely access to preemptive kidney transplants for patients with ADPKD. Our findings are limited by our single site study in the US, which may not apply to individuals experiencing different social, cultural, and health access conditions.
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关键词
PKD, Polycystic kidney disease, ADPKD, Preemptive transplant, Kidney transplant, Transplant patient perspective
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