Enhanced Medical Support for Primary Immunodeficiency Disorders (PIDD): A Patient-guided Intervention to Ensure Patient Engagement During a Global Pandemic and Beyond

Kathleen Sullivan,Pam McFadden,Steve Folstein,Monica Augustyniak,John Boyle,Victoria Dimitriades,Carla Duff,Katja Fort-Rhoden,Jennifer W. Leiding,Kenneth Paris,Nicholas Rider,Christopher Scalchunes,Marry Elizabeth Younger,Patrice Lazure,Ginny Jacobs

Journal of Allergy and Clinical Immunology（2023）

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摘要

An educational program on Primary Immunodeficiency Disorders (PIDD) was informed by survey findings of 315 Immune Deficiency Foundation patients. Developed by immunologists and patient stakeholders at the American Academy of Allergy, Asthma & Immunology, the educational program included four activities: Module 1 (PIDD diagnosis), Module 2 (Telehealth in PIDD), and two simulation cases.

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关键词

primary immunodeficiency disorders,global pandemic,patient-guided engagement,pidd

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