Mp21-02 experiences of minorities with interstitial cystitis/bladder pain syndrome

You have accessJournal of UrologyCME1 Apr 2023MP21-02 EXPERIENCES OF MINORITIES WITH INTERSTITIAL CYSTITIS/BLADDER PAIN SYNDROME Catherine Brownstein, Leigh Garrett, Erika Kline, Judy Chandler, Nicki Mehall, Lee Lowery, Sonja Ziniel, and Pressley Smith Catherine BrownsteinCatherine Brownstein More articles by this author , Leigh GarrettLeigh Garrett More articles by this author , Erika KlineErika Kline More articles by this author , Judy ChandlerJudy Chandler More articles by this author , Nicki MehallNicki Mehall More articles by this author , Lee LoweryLee Lowery More articles by this author , Sonja ZinielSonja Ziniel More articles by this author , and Pressley SmithPressley Smith More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000003246.02AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Interstitial cystitis/bladder pain syndrome (IC/BPS) is a multifactorial, chronic syndrome involving urinary frequency, urinary urgency, and bladder discomfort that affects an estimated 10 million patients in the United States. Diagnosing IC/BPS focuses on the exclusion of other diseases and patients report that receiving a diagnosis involves multiple healthcare providers and usually takes several years. Therefore, this study focused on the comparing the experiences and diagnostic journeys between different races and ethnicities. METHODS: In collaboration with the Interstitial Cystitis Association and Inspire.com, we administered a web survey around IC/BPS symptomatology and pain experiences between June and August 2022. Ethnicity and racial identities were categorized into 5 groups: Hispanic (1), and the non-Hispanic groups Black/African American (B/AA) (2), Native American and Hawaiian (NAH) (3), Asian (4), and White/Caucasian (W/C) (5). We used Chi2-test to compare categorical variables and median tests to compare continuous variables across the 5 race/ethnicity groups. RESULTS: Overall, 1,631 respondents answered the survey (Table 1). B/AA and W/C perceive the strong need to urinate with little warning as well as having bladder pain to occur at a higher frequency compared to Hispanics (p=0.046; p<0.001). Urinating <2 hours after having urinated is reported to occur at a higher frequency in W/C and NAH (p<0.001). Hispanics are less likely to report bladder pain to be a big problem (p=0.001). Getting up at night to urinate is a big problem for B/AA (p=0.037). B/AA had the shortest median time (0.5 years) between start of symptoms and diagnosis while W/C had the longest (2 years) (p<0.001). CONCLUSIONS: Our survey of individuals with IC/BPS found differences in experiences between races and Hispanic ethnicity, including the impact of pain and time to diagnosis. However, only 16% of individuals responding were Minorities (vs. 58% of the US population) and 5% of individuals responding were AA (vs. 13% of the US population). This indicates that additional investigation is warranted to understand the experiences and needs of Minority individuals with IC/BPS. Source of Funding: U54DK104309-08 © 2023 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 209Issue Supplement 4April 2023Page: e284 Advertisement Copyright & Permissions© 2023 by American Urological Association Education and Research, Inc.MetricsAuthor Information Catherine Brownstein More articles by this author Leigh Garrett More articles by this author Erika Kline More articles by this author Judy Chandler More articles by this author Nicki Mehall More articles by this author Lee Lowery More articles by this author Sonja Ziniel More articles by this author Pressley Smith More articles by this author Expand All Advertisement PDF downloadLoading ...