Perceived Communication Experiences of Children and Young People with Down Syndrome: The Impact of People, Places, and AAC Methods

People with Down syndrome can experience communication challenges, impacting daily interactions. Augmentative and Alternative Communication (AAC) can be beneficial, including signing and electronic communication aids. Research mostly focuses on intervention studies, limiting insight into real-world AAC experiences. An online survey was developed to investigate perceived challenges and opportunities related to AAC experienced by children and young people with Down syndrome and their families, completed by 264 caregivers. We report on AAC currently used, support received, and contextual influences. The results highlight that despite signing being the most used form of AAC for the group, its use presents barriers in wider social contexts due to required communication partner skill. Electronic AAC, however, appears under-used, and challenges related to support and the physical properties of communication aids are reported. Further research should extend understanding related to AAC use across social contexts and device onboarding to enhance societal participation and independence.