“Where do I go? Who do I go to?”: BRCA Previvors, genetic counselors and family planning

PEC Innovation(2023)

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摘要
This study offers an innovative lens through which scholars and healthcare providers may examine the experiences of previvors as they seek adequate care. Asking previvors to explain their perceptions of conversations with genetic counselors and healthcare providers offers insight into the communicative process of seeking care rather than the health outcomes of the care itself. Our findings suggest biases among providers related to gender, age, and sexual orientation are concerning elements of family planning communication that potentially interrupt previvors' abilities to express their care needs in a safe environment. We argue for an increased awareness of, and advocacy for, more inclusive conversations regarding treatment and family planning decisions.
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关键词
genetic counselors,brca previvors,family,planning
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