Impact of Chronic Graft-versus-Host Disease on Patient Employment, Income, and Informal Caregiver Burden: Findings From the Living With Chronic GVHD Patient Survey

•The Living With Chronic GVHD Patient Survey assessed disease effects on patients.•Most employed patients took disability leave or reduced their work hours due to chronic GVHD.•More than one-third of employed patients left a job because of their chronic GVHD.•Approximately three-quarters of patients reported receiving regular caregiver assistance.•Approximately one-half of unpaid caregivers reduced working hours or left their jobs.