Brain health registry updates: An online longitudinal neuroscience platform.

Michael W Weiner,Anna Aaronson,Joseph Eichenbaum,Winnie Kwang,Miriam T Ashford, Shilpa Gummadi,Jessica Santhakumar,Monica R Camacho,Derek Flenniken,Juliet Fockler,Diana Truran-Sacrey,Aaron Ulbricht,R Scott Mackin,Rachel L Nosheny

Alzheimer's & dementia : the journal of the Alzheimer's Association（2023）

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摘要

Brain Health Registry (BHR) is an online, longitudinal platform of > 100,000 members. BHR made > 259,000 referrals, which enrolled 25,997 participants in 32 studies. New efforts increased enrollment and engagement of underincluded communities in BHR. The major advantages of the BHR approach are scalability and accessibility. BHR provides a unique adjunct for clinical neuroscience research.

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关键词

Alzheimer's disease,Brain Health Registry,aging research,clinical trial recruitment,dementia,diversity,internet,internet registry,neuropsychological tests,neuroscience clinical research studies,online,remote assessment,remote biomarker collection

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