Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for mucocutaneous bleeding disorders.
Expert review of hematology（2023）
摘要
Improving our understanding of the basic biology of MCB, large cohort longitudinal natural history studies, collaboration, and creative approaches to novel therapeutics will be important in maximizing the benefit of future research for the entire MCB community.
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关键词
Bleeding disorder of unknown cause,National Hemophilia Foundation,inherited bleeding disorders,inherited platelet disorders,mucocutaneous bleeding,patient-centered,von Willebrand disease
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