Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research to advance the health of people with inherited bleeding disorders with the potential to menstruate.

Maureen K Baldwin,Homa K Ahmadzia,Diane L Bartlett, Debbie Bensen-Kennedy, Vidhi Desai,Kristina M Haley, Sherry L Herman-Hilker,Amanda M Kilgore,Roshni Kulkarni,Michelle Lavin, Shari Luckey,Kristen A Matteson, Kristin Paulyson-Nuñez,Claire S Philipp,Sachiko Ragosta,Kimberly Rosen,Dawn Rotellini,Angela C Weyand

Expert review of hematology（2023）

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摘要

The needs of PPM will best be advanced with research designed across the spectrum of sex and gender biology, with methodologies and outcome measures tailored to this population, involving them throughout.

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关键词

Gender disparity,National Hemophilia Foundation,Patient-centered,heavy menstrual bleeding,inherited bleeding disorders,sex disparity

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