Cross-sectional study evaluating the association of haemophilia-related distress and clinically relevant outcomes.

Sara Guasch,Lia C Scott,Janet Figueroa,Tyler W Buckner,Shanna Mattis,Duc Q Tran,Christine L Kempton

Haemophilia : the official journal of the World Federation of Hemophilia（2023）

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摘要

Haemophilia-related distress is associated with poor adherence to factor prophylaxis and work-impairment. The direction of the association (causation) is yet to be determined and requires future study.

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关键词

haemophilia,hemarthrosis,medication adherence,psychological distress

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