Parents' experience of the communication process of positivity at newborn screening for metabolic diseases: A qualitative study.

Marco Bani,Selena Russo,Erika Raggi,Serena Gasperini,Serena Motta,Francesca Menni,Francesca Furlan,Graziella Cefalo,Sabrina Paci,Giuseppe Banderali,Paola Marchisio,Andrea Biondi,Maria Grazia Strepparava

Child: care, health and development（2023）

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摘要

More efforts are needed to improve the quality of the communication process of the ENBS. Guidelines, recommendations and standard scripts to communicate positivity are needed along with programmes and educational resources to train tailored communication skills.

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关键词

communication of positivity,communication process,expanded newborn screening,information needs,parents' experiences

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