Humanistic burden of problem joints for children and adults with haemophilia.
Haemophilia : the official journal of the World Federation of Hemophilia（2023）
摘要
This study has shown a meaningful burden of PJs on PwH, which should be considered in clinical and health policy assessments of joint health.
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关键词
haemarthrosis,haemophilia,humanistic burden,problem joint,productivity impairment,quality of life
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