Parents’ decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project

Stacey Pereira,Amanda M. Gutierrez,Jill Oliver Robinson,Kurt D. Christensen,Casie A. Genetti,Carrie L. Blout Zawatsky,Rebecca L. Hsu,Bethany Zettler,Melissa Kurtz Uveges,Richard B. Parad,Alan H. Beggs,Ingrid A. Holm,Robert C. Green,Amy L. McGuire

Genetics in Medicine（2023）

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摘要

Results show considerations to better support parental decision-making that aligns with their values when offering AO genetic information because it is more commonly integrated into pediatric clinical care.

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关键词

Adult onset,Decision-making,ELSI,Newborn screening,Newborn sequencing

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