Research priorities in Primary Ciliary Dyskinesia - patients' perspective
Klinische Pädiatrie 43. Jahrestagung der Gesellschaft für Pädiatrische Pneumologie(2022)
Abstract
Introduction Patients can provide important perspectives for health research that may differ from those of health care professionals. This is particularly important for a rare disease with many knowledge gaps like primary ciliary dyskinesia (PCD). We aimed to identify research priorities in PCD from the patients’ perspective in a mixed-methods study.
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Key words
primary ciliary dyskinesia
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