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Research priorities in Primary Ciliary Dyskinesia - patients' perspective

Y. T. Lam,L. Behan, K. Dexter, L. Dixon,C. E. Kuehni, E. S. Pedersen, J. Lucas,M. Goutaki

Klinische Pädiatrie 43. Jahrestagung der Gesellschaft für Pädiatrische Pneumologie（2022）

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Abstract
Introduction Patients can provide important perspectives for health research that may differ from those of health care professionals. This is particularly important for a rare disease with many knowledge gaps like primary ciliary dyskinesia (PCD). We aimed to identify research priorities in PCD from the patients’ perspective in a mixed-methods study.
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primary ciliary dyskinesia
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