Multicenter Assessment of Sturge-Weber Syndrome: A Retrospective Study of Variations in Care and Use of Natural History Data

Rachel A Arnesen,Kristen K Barbour,Alan Wu,Elissa G Yozawitz,Aaron Nelson,Steven M Wolf,Patricia E McGoldrick,Natasha Basma,Zachary M Grinspan

Pediatric Neurology（2023）

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摘要

Clinical charts have important gaps in the level of detail around core SWS clinical features, limiting value for some natural history studies. Any clinical trial in SWS designed to prevent epilepsy should begin in the first year of life. Variations in use of aspirin suggest de facto clinical equipoise and warrant a comparative effectiveness study.

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关键词

Seizure,Epilepsy,Antiseizure medication,Pediatric,Sturge-Weber syndrome

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