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VP.55 Fatigue, pain, breathing, voice, fatigability, sleep, rest and vulnerability as meaningful outcomes in SMA care: the patients´ and caregivers' voice

M. Povedano,J. Vázquez-Costa,I. Pitarch,M. López-Lobato,J. Medina, J. Fernández-Ramos, M. Lafuente-Hidalgo,R. Rojas-García, J. Caballero-Caballero,I. Málaga, J. Eirís,M. De Lemus, M. Cattinari,M. Madruga-Garrido,M. Branas, R. Cabello-Moruno, P. Díaz-Abós, A. Terrancle,J. Maurino, P. Rebollo

Neuromuscular Disorders（2022）

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