Content specification for a patient decision aid for BRCA mutation carriers

Women with a pathogenic mutation in the BRCA1 or BRCA2 genes have an elevated lifetime risk of developing breast and ovarian cancer. To address this risk, women are managed with a combination of surveillance and/or risk-reduction strategies. Decisions about risk-management strategies can be complex, personal and multifactorial. The overall aim of this project is the development of a web-based patient decision-aid toolkit for BRCA mutation carriers that will improve the decision-making process by providing the user with information about their cancer risk, options for risk-management and potential benefits and side-effects.