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Developing a National Newborn Genomes Program: an Approach Driven by Ethics, Engagement and Co-design

Amanda Pichini,Arzoo Ahmed,Christine Patch,David Bick,Mathilde Leblond,Dalia Kasperaviciute,Dasha Deen, Simon Wilde, Sofia Garcia Noriega, Christella Matoko,Alice Tuff-Lacey,Chris Wigley,Richard H. Scott

Frontiers in Genetics（2022）

Cited 26|Views28
Key words
newborn screening,whole genome sequencing,rare diseases,public health,ethics,public engagement,co-design
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