Navigators' Perceptions of Their Work in Childhood Neurodisability: What They Do and What They Call It

The application of 'Patient Navigation' to childhood neurodisability is relatively new, and it is therefore critical that conceptualizations of patient navigation reflect the unique needs and circumstances of this population. The current qualitative study engaged individuals (n = 174) who perform navigation-related work within childhood neurodisability in British Columbia, Canada. Participants' survey responses elucidated a comprehensive conceptualization, including what 'navigation' aims to provide and facilitate, and overarching guiding principles. There was also great diversity in participants' role titles. Our research identifies the broad set of navigation-related actions and principles that can be implemented in response to child and family circumstance.