POSC355 Measuring the Experience of Living with Spinal Muscular Atrophy: The Role of the SMA Independence Scale
Value in Health(2022)
Abstract
The experience of living with Spinal Muscular Atrophy (SMA) has been insufficiently explored. The SMA Independence Scale (SMAIS) is a new self-reported questionnaire to assess the amount of assistance patients require to perform daily activities. The aim of the study was to assess disease impact from the patients´ perspective and analyze the psychometric characteristics of the SMAIS.
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Key words
spinal muscular atrophy,sma independence scale
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