Gearing up for the future: Exploring facilitators and barriers to inform clinical trial design in frontotemporal lobar degeneration.

Yasmin B Banga, Yujung Lai, Priscilla Kim,Bradley F Boeve,Adam L Boxer,Howard J Rosen,Leah K Forsberg,Hilary W Heuer,Danielle Brushaber,Brian Appleby,Joanna M Biernacka,Yvette M Bordelon,Hugo Botha,Andrea C Bozoki,Patrick Brannelly,Brad C Dickerson,Susan Dickinson,Dennis W Dickson,Kimiko Domoto-Reilly,Kelley Faber,Anne M Fagan,Julie A Fields, Ann Fishman,Tatiana M Foroud,Doug R Galasko,Ralitza H Gavrilova,Tania F Gendron,Daniel H Geschwind,Nupur Ghoshal,Jill Goldman,Jonathan Graff-Radford,Neill R Graff-Radford,Ian Grant,Murray Grossman,Ging-Yuek Robin Hsiung,Eric J Huang,Edward D Huey,David J Irwin,David T Jones,Kejal Kantarci,Anna M Karydas,Daniel Kaufer,David S Knopman,Joel H Kramer,Walter K Kremers,John Kornak,Walter A Kukull, Emma Lagone,Gabriel C Leger,Irene Litvan,Peter A Ljubenkov,Diane E Lucente,Ian R Mackenzie,Masood Manoochehri,Joseph C Masdeu,Scott McGinnis,Mario F Mendez,Bruce L Miller,Toji Miyagawa,Kevin M Nelson,Chiadi U Onyike,Alex Pantelyat,Belen Pascual,Rodney Pearlman,Leonard Petrucelli,Cyril P Pottier,Rosa Rademakers,Eliana Marisa Ramos,Katherine P Rankin,Katya Rascovsky,Jessica E Rexach,Aaron Ritter,Erik D Roberson,Julio C Rojas,Marwan N Sabbagh,David P Salmon,Rodolfo Savica,William W Seeley,Adam M Staffaroni,Jeremy A Syrjanen,Maria Carmela Tartaglia,Nadine Tatton,Jack C Taylor,Arthur W Toga,Sandra Weintraub,Diana Wheaton,Benjamin Wong,Zbigniew Wszolek

Alzheimer's & dementia : the journal of the Alzheimer's Association（2021）

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摘要

Favorable attitudes and interest towards medical research exist among participants. To optimize participation, clinical trials should allocate funding for travel and involve participants in feedback about study results and their disease progression. Alternatives to invasive assessments may increase participation.

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