Palliative care in fetal medicine Cuidados paliativos em medicina fetal

1. Psychology Division, Central Institute, Clinical Hospital, São Paulo University Medical School. ORCID: Bolibio R 0000-00023948-1767. 2. Group for Full Support (Grupo de Apoio Integral − GAI) for Pregnant Women and Family Members of Fetuses with Malformations, Obstetrics Clinic and Children’s Institute, Clinical Hospital, São Paulo University Medical School. ORCID: Jesus RCA 00000002-5022-3398; Oliveira FF 0000-0002-6278-2525; Benute GRG 0000-0003-4545-1887. 3. Obstetrics course, Department of Obstetrics and Gynecology, São Paulo University Medical School. ORCID: Francisco RPV 00000002-9981-8069; Bernardes LS 0000-0003-2367-2849. 4. Department of Pediatrics, Children’s Institute, Clinical Hospital, São Paulo University Medical School. ORCID: Gibelli MABC 0000-0001-9074-7500; Gomes AL 0000-0001-5083-8360. 5. Nursing Division, Central Institute, Clinical Hospital, São Paulo University Medical School. ORCID: Nascimento NBO 00000002-3281-3896. 6. Social Services Division, Central Institute, Clinical Hospital, São Paulo University Medical School. ORCID: Barbosa TVA 00000001-7388-2102. Corresponding author: Lisandra Stein Bernardes. Av. Dr. Enéas de Carvalho Aguiar, 255, 10 Andar Obstetrícia. São Paulo, SP, Brazil. E-mail: lisbernardes@usp.br. ABSTRACT: Fetal malformations affect approximately 3% of pregnancies, and the possibility of this diagnosis is one of the main concerns of parents and family members. When a malformation that implies potential mortality for the child is diagnosed, the pregnancy’s follow-up needs to be planned, including diverse aspects such as thorough evaluation of the prognosis, organization of post-partum care, and follow-up with the family in a broad and integrated manner. Recently, palliative care concepts have been introduced into perinatology for this purpose. This article discusses the application of the palliative care model to the care of pregnant women and family members of fetuses with malformations.