Title: An integrative review exploring psycho-social impacts

The purpose of this integrative review was to explore psycho-social impacts and 12 therapeutic interventions for parent caregivers of young people living with Duchenne’s Muscular 13 Dystrophy (DMD). This review utilised Whittemore and Knafl's [1] methodology. Electronic 14 databases were searched for research publications between 2010 and 2020. This included Medline, 15 CINAHL, PsycINFO, ERIC, ERC, AMED. Four central themes emerged: Living with DMD; 16 Knowing and telling; Transitioning; Building resilience. The impact on parents caring for a child 17 with DMD affected all aspects of their lives, changed over time and had identifiable peak stress 18 points. Unmet parental information and support needs left parents struggling in their role. 19 Transition required changes to parenting behaviours and required adaptation and resilience. It is 20 proposed that future investment should focus on anticipating family need, targeting intervention 21 cognisant of predictable stress points and building resilience through social community. Parents 22 may then be better positioned to support their child in looking forward. 23