A longitudinal qualitative study to explore and optimize self-management in mild to end stage chronic kidney disease patients with limited health literacy: Perspectives of patients and health care professionals

•Innovative study, combining perspectives of patients with LHL and professionals.•Due to limited information, patients are often unaware of kidney disease in primary care.•Mental problems, resignation and failed attempts hinder to maintain self-management.•Professionals lack competences to identify and communicate with LHL patients.•Person-centered interventions targeting LHL patients and professionals, are needed.