Early Assessment And Support Alliance Connections: Community-Based Participatory Research To Develop A Peer-Based Early Psychosis Web Resource With Young Adults

Dora M Raymaker,Tamara Sale, Mariam Rija, Nicholas Buekea, Nybelle Caruso,Ryan Melton, Natalie Cohrs, Veronica Gould, Christina Wall,Mirah Scharer

PROGRESS IN COMMUNITY HEALTH PARTNERSHIPS-RESEARCH EDUCATION AND ACTION(2020)

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摘要
Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research.Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, web-based, recovery resource.Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it.Lessons Learned: The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one's self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one's self and peers.Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult co-researchers. We strongly recommend including YA who have experienced EP as co-researchers.
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关键词
Early psychosis, Community-based participatory research, Peers, Web accessibility, Web-based intervention, Young adults
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