Neuromyelitis optica spectrum disorder in China: Quality of life and medical care experience

Wenjuan Huang,Jingzi ZhangBao,Xuechun Chang,Liang Wang,Chongbo Zhao,Jiahong Lu,Min Wang,Xiaoyan Ding,Yafang Xu,Lei Zhou,Dingguo Li,Megan K Behne,Jacinta M Behne,Michael R Yeaman,Eliezer Katz,Chuanzhen Lu,Chao Quan

Multiple Sclerosis and Related Disorders（2020）

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摘要

•NMOSD negatively impacted Chinese patients’ physical and emotional health.•Visual impairment, bodily pain, and bowel and bladder disturbance decreased QoL.•The Chinese cohort exhibited low psychological resilience.•NMOSD influenced the decision to have children and impaired work ability.•Heavy financial burden and insufficient health insurance coverage diminished QoL.

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关键词

Neuromyelitis optica spectrum disorder (NMOSD),Quality of life (QoL),Short Form 36 (SF-36),Aquaporin 4 (AQP4)

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