PD40-07 ADDRESSING HEALTH LITERACY IMPROVES SHARED DECISION MAKING IN UNDERSERVED AFRICAN AMERICAN PROSTATE CANCER PATIENTS

You have accessJournal of UrologyGeneral & Epidemiological Trends & Socioeconomics: Practice Patterns, Quality of Life and Shared Decision Making IV (PD40)1 Apr 2020PD40-07 ADDRESSING HEALTH LITERACY IMPROVES SHARED DECISION MAKING IN UNDERSERVED AFRICAN AMERICAN PROSTATE CANCER PATIENTS Kerry Kilbridge, William Martin-Doyle*, Christopher Filson, Quoc-Dien Trinh, Sierra Williams, and Viraj Master Kerry KilbridgeKerry Kilbridge More articles by this author , William Martin-Doyle*William Martin-Doyle* More articles by this author , Christopher FilsonChristopher Filson More articles by this author , Quoc-Dien TrinhQuoc-Dien Trinh More articles by this author , Sierra WilliamsSierra Williams More articles by this author , and Viraj MasterViraj Master More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000000920.07AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Prostate Cancer is an important source of health disparities in African American men. We evaluated a tailored, low-literacy educational supplement (Ed Supp) in an underserved population of newly diagnosed African American patients with early stage (cT1c-cT2) prostate cancer. METHODS: Newly diagnosed African American prostate cancer patients were recruited from the Atlanta Veterans Administration Medical Center and Grady Memorial Hospital. After patients met with their providers to discuss their prostate cancer treatment options they participated in an Ed Supp delivered as a scripted, face to face interview. The low-literacy Ed Supp does not rely on the patients’ reading or math skills. The Ed Supp allowed patients to choose between colloquial and medical terms for genitourinary function (GU) to augment information acquired in their provider visit. Icons and an anatomic model were used to explain treatment side effects using the patient’s preferred language; illustrated cards served as tangible representations of the probabilities of treatment side effects. We measured decisional conflict, understanding of treatment side effects and prevalence of side effects, after patients met with their provider, and again after they received the low-literacy Ed Supp. RESULTS: A total of 153 African American patients participated. Average age was 63 and 51% had an annual income < $25,000. There were 38% who had a high school degree, 15% had less than a high school education, and 12% had a college degree or greater. Median health literacy was 7th-8th grade measured by the Rapid Estimate of Adult Literacy in Medicine. Just 39% could calculate a simple fraction and percents. Only 25% could correctly name the cancer treatments that were previously discussed with their provider. Comprehension of common GU medical terms was poor (e.g. only 20% knew the word “incontinence” and 65% understood “erectile dysfunction”). Over 90% of patients preferred a mixture of colloquial and medical terms for GU function and anatomy. After participating in the low-literacy educational supplement, comprehension of treatment side effects and prevalence were improved to 94% or more (p<0.001); and decisional conflict decreased statistically significantly from mean total 37.5 to 12.75 (p<0.001). CONCLUSIONS: Comprehension of prostate cancer treatment side effects and decisional conflict was significantly improved by explicitly addressing health literacy among underserved African American prostate cancer patients using an Ed Supp. Source of Funding: Departmentof Defense Prostate Cancer Research Program Award No. W81XWH-13-1-0274 © 2020 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 203Issue Supplement 4April 2020Page: e817-e818 Advertisement Copyright & Permissions© 2020 by American Urological Association Education and Research, Inc.MetricsAuthor Information Kerry Kilbridge More articles by this author William Martin-Doyle* More articles by this author Christopher Filson More articles by this author Quoc-Dien Trinh More articles by this author Sierra Williams More articles by this author Viraj Master More articles by this author Expand All Advertisement PDF downloadLoading ...