How Can We Improve Patient-Centered Care Of Motor Neuron Disease?

Anne Hogden,Camille Paynter,Karen Hutchinson

NEURODEGENERATIVE DISEASE MANAGEMENT（2020）

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摘要

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

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关键词

amyotrophic lateral sclerosis, co-design, guidelines, patient and public involvement, patient engagement, policy, shared decision-making

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