Clinical profile of mucopolysaccharidosis type I patients from a Brazilian reference center

MOLECULAR GENETICS AND METABOLISM(2019)

引用 0|浏览5
暂无评分
摘要
Quality of Life (QOL) has started to emerge as an important component across numerous disciplines including tourism. Whilst studies regarding QOL have been around for decades in many disciplines, the field is relatively new in tourism. The relationship between QOL and tourism is important given that there have been studies revealing that travel can increase an individual's perceived and actual QOL. Those studies that have examined the relationship between QOL and tourism have focused on pleasure/leisure travel. Thus, other types of travel, namely Visiting Friends and Relatives (VFR) travel have not been examined with respect to QOL. In terms of QOL, VFR can be derided in conversation, identifying it as an unwanted irritation that can hardly boost QOL. This is particularly relevant in terms of VFR hosting. However, the link between VFR and QOL has not been empirically tested and as such, it is unclear whether VFR can improve or reduce QOL. Accordingly, this paper examines the link between VFR travel and QOL. Based on a sample size of 552 across Australia, this research found that whilst VFR can reduce QOL in some situations, in most cases, positive QOL benefits arise from both hosting and visiting VFRs.
更多
查看译文
关键词
mucopolysaccharidosis type,clinical profile,patients
AI 理解论文
溯源树
样例
生成溯源树,研究论文发展脉络
Chat Paper
正在生成论文摘要